I have an appointment at noon on Wednesday at the major cancer center in Houston. This is a wonderful thing, a huge answer to prayer, to not have to wait weeks and weeks just to get an appointment.
We are so grateful to those who are helping with the kids, including Mallorie. John got the information about the appointment, and was told to plan on being there 2 days. I don't know if it was "at least" 2 days, or just plain old "2 days." A friend who has had to go to the same medical center recently said that she had been told to plan to stay as long as 5 days, so that's been on my mind, wondering.
I'm nervous (major understatement here), but more relieved to have this day come because it feels like life is on hold right now, knowing nothing of what to expect. Will there be weekly treatments, more often, less? Can any be done locally, or all out there? I think that some of those answers, if we get them, will help with adjusting our lives to this. Some answers, I know, are just to wait and see. Never has been my biggest forte, the wait and see part, but I am sure I will learn.
The kids are starting to really show signs of problems coping with the news, so please pray for them as you think of us. They are just kids, and it's very hard on them.
The Trisomy 18 Connection
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