But got such a great sleep during the procedure that she snoozed pretty much all day afterward, and her heartrate kept dipping into the 50's. As 6 pm neared, and the doctors started their rounds, I prayed that God would direct the decision about extubation, and that they'd simply have a good feeling about today vs tomorrow. The attending came in after they discussed Mallorie, laughed, because her heartrate was in the 140's and her eyes were open, but said they felt because of the timing, the best would be to give her some light sedation tonight, and even restart her feeding, and wait till tomorrow morning. That way more staff are around if she required the tube to be put back in. They will probably stop her feeding about 2 am, and could try taking out the tube as early as 8 am.
So she had a visit from her other mommy, Tracy, who promptly set to work fixing her hair, making sure her face was clean, putting on her baby legs (found by Tamara) and telling her how much she loved her. She probably sang to her while I was away showering.
Then tonight, she got a nice bath, a manicure and pedicure, and smells like baby lotion.
And keeps trying to sneakily turn herself over onto her tummy. Just like at home. :) We keep promising her if she breathes really well tomorrow and keeps her tube out, we will let her sleep on her tummy.
In October 2006, we went for an ultrasound for our fifth child, and were told that our daughter probably had a chromosomal defect. We were urged to get an amniocentesis so that genetic testing could be done, “so the doctors will know what decisions to make.” The specialist told us that he suspected Trisomy 13 or 18, and if he was correct, then no OB would do a c-section because it wouldn’t make a difference for the end outcome. Besides, no surgeon would operate on her back (she had a meningocele – spina bifida), because “Trisomy 18 and 13 are what are called lethal conditions. They are incompatible with life.”
That’s how our story with her began, but it is most certainly not the end. As her amazing pediatrician said about examining her at birth, “I looked into her eyes, and she looked back at me and said, I’m here for the long haul, chick.”