Our Little Teapot

Wednesday, March 23, 2011

6 comments:

Jacquie said...: Great song. You'd have to think he's had a personal experience.
I've checked for you regularly. Hope you're doing ok.
Jacquie; Thursday, March 24, 2011 at 6:20:00 AM CDT
Yin May said...: Oh connie this song is meant for our babies. thank you for still sharing...thinking of you and mal always.; Thursday, March 24, 2011 at 6:42:00 AM CDT
Laurie in Ca. said...: Beautiful song Connie. I think of you and pray for you so often and am hoping that God is getting you through one day at a time. I miss my Mallorie and I know you and your family do too every minute of each day. I love you girl and will keep praying for you my sweet friend. God bless and keep you comforted always.

Love and Hugs, Laurie; Thursday, March 24, 2011 at 7:37:00 AM CDT
The VW's said...: What a touching song! Gave me tears and goose bumps! Love and Hugs to you!!!; Thursday, March 24, 2011 at 4:12:00 PM CDT
Cathy said...: Thank you Connie for this advice, I think I am able to comment on blogs. You are sooooo smart! Miss seeing and talking with you.; Thursday, June 23, 2011 at 9:57:00 PM CDT
Kathleen said...: I miss Mallorie's cute smile! I can't imagine how much you must miss her. Love and prayers from a longtime lurker.; Wednesday, July 27, 2011 at 9:30:00 PM CDT

the beginning of mallorie rose's story

In October 2006, we went for an ultrasound for our fifth child, and were told that our daughter probably had a chromosomal defect. We were urged to get an amniocentesis so that genetic testing could be done, “so the doctors will know what decisions to make.” The specialist told us that he suspected Trisomy 13 or 18, and if he was correct, then no OB would do a c-section because it wouldn’t make a difference for the end outcome. Besides, no surgeon would operate on her back (she had a meningocele – spina bifida), because “Trisomy 18 and 13 are what are called lethal conditions. They are incompatible with life.”

That’s how our story with her began, but it is most certainly not the end. As her amazing pediatrician said about examining her at birth, “I looked into her eyes, and she looked back at me and said, I’m here for the long haul, chick.”