Saturday, September 18, 2010

Mallorie died early this morning.  Somewhere between 4 and 5 AM.  My mom is trying to catch up on sleep (she hasn't slept much in too long) and she doesn't have the heart or energy to post this right now.  I'll let her revise or delete this and write her own when she's ready, but I think a lot, if not all, of you would like to know.

She was admitted yesterday morning to our local hospital by Dr. B. (God BLESS her) after an appointment where her blood-oxygen levels were very low.  She had pneumonia, it turns out.  Again.

Things went down hill this morning.  The staff at our hospital worked so hard to get her heart beating, even doing what some would consider "extraordinary measures."  They weren't just going to let her die.  It was when my mom knew that she was gone that they stopped.  No one gave up on her.  Not one.  The staff loved that sweet baby and treated her like any other.  They are such a blessing to us.


Carley

39 comments:

Mrs Redboots (Annabel Smyth) said...

I am so sorry. You will miss her dreadfully, I know. My thoughts and prayers are with you at this sad time.

Michelle said...

Praying for your family! What a precious little girl!

ANewKindOfPerfect said...

I am so sorry. As I posted below, many strangers have been touched by your beautiful Mallorie and her amazing life.

Please give your Mom and the rest of the family my love during this terrible time.

MY LIFE WITH BOYS! said...

I have been following your blog for some time. I am heartbroken to hear of her passing. She is in peace now with the Lord. May God bring comfort to your family.

Paula71 said...

I am sorry for your loss. We are all praying for you and your family.

Kim (marygracesummons.blogspot.com) said...

Carley, Your Mom is one of the first that reaced out to me when I found out my sweet girl Mary Grace had Trisomy 18. I will never forget her e-mail and length on how and why to fight for my girl. That is when I met Mallorie and she forever changed me and our family. We have prayed without ceasing for her and have enjoyed seeing her life with your family bring you and so many thousands of people great joy. She brought hope when there was none. I am so sad that you had to say good bye for now...but am rejoicing in her complete healing. Please tell Connie I love her and will pray for you all. I am just so sorry for you all.
With love,
Kim Summons (mary grace's mom)

Carrie said...

Carley,

I am so sorry!! I only met your sister once when we were both at TCH (remember how many times we passed in the washroom to the PICU?). Please let your mom know that I am thinking about her and have never forgot her, your sister, or your family!

Carrie
(Mom to Hannah)
http://www.littlemisshannah.com

P.S. I was the one who brought Dr. Roy to visit with your Dad and sister when Mallorie and Hannah were both on the PCU floor. Your mom was a breath of sanity for me there, as it was comforting talking to her about our girls!

Janet said...

Many thoughts and prayers for your family.

buddzoo said...

I am so, so sorry. My heart is breaking for you. Many prayers for comfort and peace.
Susan (Mom to Rebekah, 16 months with trisomy 18)

Demetria Murdock said...

Praying for you and your family. I also lost my sweet boy who lived with Trisomy 18 in March 2007. I pray that God comforts your heart, gives you strength to endure and brings about a peace that will surpass all understanding. I share my journey on my blog. I hope it can also encourage you in such a difficult season of life. http://dememurdock.blogspot.com/2009/08/hope-griefs-best-music.html

Blessings,
Demetria Murdock

Anonymous said...

Lilian Grace and so many others of our precious angel babies welcomed Mallorie yesterday to be with Jesus. I can't give you anything that makes this feel better. After meeting many who are celebrating their babies one year heaven birthday, I see that you never stop missing them...some days are better than others. As one of my dearest T8 mothers & friend said to me....cry and breath and cry and smile.

The only thing that really comforts me is knowing I will get to spend eternity with her! I'm crying right with you and sending many hugs and lots of love.
If there's a shoulder you need to cry on or an ear to just listen...I'm here~ bestill78@gmail.com

Chrissy Whitten
Lilian Grace's Mom (she lived 103 days and earned her wings August 5, 2010) You can also visit http://www.caringbridge.org/visit/liliangracewhitten/journal

Finding Normal said...

Dear Connie and family,
I am crying for you this morning, having just read this. My heart breaks for the pain you are going through and this new leg of your journey. Mallorie has always been an inspiration to me, as has the entire family via this blog. I will be lifting you all up in prayer and wishing I could be there for the celebration of Mallorie's life. God bless you all. Love you!

Krystal said...

My heart breaks for your loss but rejoices that Mallorie is completely healed and in heaven, rejoicing with God. I am praying for you.

Annie said...

I am so sorry for the loss of your sweet Mallorie. I have followed your blog for some time. Thank you for sharing her beautiful life and for sharing about the very wonderful caregivers who have been part of her life.
God bless your family.

Cathy said...

Connie I will treasure our visit yesterday. I needed to hear how it all took place and the major roll Dr. B played. Her love for our babies gives us such confidence that she will heal our babies and let God do the rest. She carries them until He is ready for them to come home. Now, I am going to bug you about taking care of Connie. You are blessed with such a beautiful family.

Heather said...

I am so sorry to hear of your loss. Your family is in my prayers.

Heather (here via Finding Normal)

Loren Warnemuende said...

Dear Family of Mallorie,

Another T18 mom just posted concerning your loss, and I wanted to let you know that I am praying for you and yours in your grief. Our sweet Keren-girl passed away in January of last year after a bout of pneumonia as well. She was 6 1/2, our miracle girl. It hurts so much, and yet God is so good....

~Loren Warnemuende

Lisa said...

I am so very sorry for your loss. please take comfort in knowing Sweet, Beautiful mallorie has received her complete healing in Christ! I am praying for all of your hearts for peace and strength in the comming days ahead! We will always love Mallorie.

Kathy said...

So, so sorry.

Praying for the peace that only God can give.

She was treasured and loved by family and cared for, as Carley so perfectly said, by a wonderful doctor and staff that "loved that sweet baby." God bless you all.

Lianne said...

God bless y'all. I'm so sorry. May God strengthen and hold you up with His mighty and loving hands.

Jamie Lea Anglen said...

I'm so sorry for your loss. Your daughter was truly a miracle and now is resting in the arms of Jesus. I am praying for your family.

Anonymous said...

I'm so sorry.

You and her have been, and are, so strong. (And your family!) She was a precious little girl who is VERY loved by many people, most of all your family, and that has always been so obvious.

There are not words for how sorry we all are.

Anonymous said...

I am so sorry. Mallorie was such a beautiful girl here on earth and in heaven.
Love and prayers to your family.

Laurie in Ca. said...

I loved Mallorie and love you Connie. My heart is just breaking for you and your family as you walk this painful road in her wonderful and miraculous journey. She will always have a huge place in my hurting heart. I am asking God to carry you all tenderly in the days ahead as you miss your precious treasure, and she is a treasure. She changed my life in so many ways and I will always be grateful for you sharing her with me. I love you and you have my heart dear friend. I am so sorry.

Love and Hugs, Laurie

Jessica mommy to Alex/ RTS said...

Connie you are constantly on my heart.

Jaci said...

I'm so sorry for your loss. There really aren't any adequate words to say.

I'm praying for peace and healing.

Jacquie said...

I am so sorry. Mallorie fought the good fight, and gave you and your family years of memories, love and happiness.
There are no words, but know you and your family are in my thoughts.

Chris and Emily said...

Oh Connie, I am so sorry. I have so loved "meeting" Mallorie and have prayed for you and her so often. Praying for you all now still. Praying for God's gentleness on you and yours as you walk the road ahead. Thank you for allowing your sweet miracle to not just bless your life, but ours too. Much love to you all.

Love, Emily( Cohen's mommy)

The VW's said...

My heart is breaking thinking of your family's enormous loss! I can't believe what I am reading! I can only imagine the great hole that is left with Mallorie gone from your earthly lives.....May God comfort you and keep you until you are reunited once again!

I have been so touched by Mallorie and by all of your family! You will be in my thoughts and prayers often! God bless you.....and may He give you peace, strength, comfort and grace...today and always! Love, Hugs and Prayers!!!

Anonymous said...

My prayers are with her family. You each have so much to be proud of, the life you each provided for her was just as close to heaven on earth as can be provided. God Blessings will be shared with each of you. I know the joy of holding such an amazing child, the unconditional love and the peace and hope they bring to lives. I am honored to know your family. You made a great impact in my life, just as Mallorie did for more people than you will ever know.
Edie and Ben Comeaux

Dave E. Anderson said...

Oh Connie, I'm so, so, so, very sorry for the loss of your beautiful daughter, Mallorie. Know that we are sending you love and praying for you all in your loss and grief for your sweet girl. Our hearts break for you. With much love, Michelle & Dave Anderson (Rhyder's Mommy & Daddy)

Michelle said...

So very sorry for the loss of precious Mallorie. Praying for your family.

Ana said...

I am so sorry for your loss. Your beautiful little Mallorie has been an inspiration with me during my pregnancy with a T18 daughter. My thoughts and prayers are with you and your family.

Your daughter had such a beautiful and important life. I hope you can eventually find some peace despite the pain.

Ana

Lora beth said...

I am so sorry for your loss.....Mallorie was such a special little girl and was LOVED by everyone who knew her. I am so happy to have had her, and your entire family, in my life for last few years. She was an angel on earth, and will continue to be one in heaven. My heart and prayers are with all of you know. Rest in Peace, little one... We love you.

May said...

Dear Connie

The news is still sinking in and I am unable to accept that Mal is gone. I cry with you and feel your unimaginable pain and loss.

Ann of the Incredible Gift said...

I am so sorry for your loss.

*hugs*

casey chappell said...

I was so glad to have been able to watch this journey of Mal's life through your eyes and through your words. I never met mal or you but know that I thank God for putting you in my life. I'm so glad God chose you to be Mal's mommy! I'm so glad God chose Mal to be your daughter. You made her short life so full and celebrated life to the fullest!!! so many people wouldn't have done that. My heart hurts in her absence. My prayers are that God continues to give you rest... and also energy to fully grieve and cry and to embrace the pain.... today and tomorrow and the months and years to come.
Missing Mal.

Casey Chappell
Fort Worth TX

Becky & Ian said...

Connie, John, Carley, Hanna, Matthew & Jacob;


You fought the fight and ran the race when Mal couldn't you were there for her to get her wings and now she will rest in Jesus's arms waiting for her beloved to join her in heaven. She was so blessed to have you as a family; you cared for her here, you care for her heroically and now she is preparing the mansion she will share with you for eternity...and she with her Lord will make it spectacular.

I am here if you ever need me.


Becky & Ian

NC Godaires said...

I was so emotionally and spiritually stirred by this blog. We have a beautiful 14 year old daughter who happens to have trisomy 21 (Down Syndrome).... I share so many of the same feelings as you... I am so sorry for your loss and cannot begin to imagine the grief. I know sweet little Mallorie is at home with our blessed Lord in Heaven. She no longer has a physical body holding her back...no longer has to rely on medical staff..she is dancing in Heaven, waiting for her family and friends to join her.