Almost ready for home. Looks like Wednesday.
Mallorie is having some trouble getting in as much as she needs (by feeding tube) under normal circumstances, and since she's actually 2 lbs or more below her pre-February weight, this is a big deal. I've started a list of high-calorie foods that can make her feedings more concentrated, like nut butters and avocado, but right now we're working on increasing the volume she takes in at a feeding. There seems to be a back-up plan of nighttime continuous feedings, and even though I am not crazy about that option (I think stomachs need to rest, sometime), I am even less crazy about having to continue waking up to do nighttime periodic feedings like now.
I love the attending who is overseeing the team caring for Mallorie right now. She is all about the details, and isn't missing the fact of Mallorie's weight loss and the need to make sure she will be able to continue doing well at home. She reminds me of Dr. B in some ways. So if she has a plan, I'll do it and stop trying to figure it all out myself. Also, there's an interesting dietician somewhere around here who came to see us last week when we first got to this floor, and she has some recipes she wanted to share. I think if she comes up with what she thinks is a good "formula" for weight gain, then it will be a good place to start. I know that as tired as I am, when I start adding going back to work into the mix, it will be easy for me to lose sight of the whole picture. So I'll happily take all the advice and help I can get from them.
Our house was broken into and some things taken when John was out here with us this time. It's been hard on the kids, and hard on us, and it's emotional for me going back knowing that this happened. It really stinks. It was just "stuff," thank God. That's the part I'm trying to keep in my mind.