Thursday, March 25, 2010

Back in the hospital again.

Mallorie has been back in the hospital since Saturday evening.  I just haven't had blog access until we got transferred back here to Houston (yesterday), and yesterday was such a blur ... and today I was feeling so sleep-deprived that this is the first time I have been able to get to posting.

Mal had been having more seizures even with her medication dosages being increased, and with her seizures she was having vomiting/reflux, so we were worried about her breathing.  We were able to spend the first few days (through Wednesday) in a local hospital where Mallorie and we always receive such gentle care, so that was a huge blessing.  Eventually, though, her neurologist in Houston felt that she needed to be out here for them to work on getting her seizures controlled.  We are currently in a 4 bed room, and there is no sense that this will change anytime soon, because each time a room opens, a new patient is admitted into that room. I'm blessed that Hannah and John are here, so today I put earplugs in and tried to nap some in a chair next to Mallorie's bed, because last night there were so many discussions going on throughout the night about her seizures, and the lack of sleep was starting to catch up with me. 

Please pray that tonight is quieter, because it was pretty loud (mostly staff conversations) in the room and in the hallway all night, and I don't want to use earplugs during the night and possibly miss hearing a change in Mallorie's breathing that could let me know she is having a seizure and might need to be suctioned. 

She got a PICC line, now. 

I know this is not much, but I have to get back to her bedside.


Crystal said...

Praying for little Mallorie! I know how hard it is when our little ones are sick. My baby is 23 and recently had a 10 day hospital stay and it's still hard!!! Praying you get some rest and she gets to come home soon! Hang in there!!

ANewKindOfPerfect said...

Mallorie! I am so sorry you guys are back in. You need to get better sweetie, so you can all get back home soon.

Momma, I hope they get her seizures under control. We are dealing with tough seizures here too lately, and they really suck. Luckily Peanut's breathing isn't affected, or we'd be inpatient along with you. Hang in there!!

The VW's said...

I'm so sorry to hear this! I was hoping that "no news = good news." :( I'll be thinking of you and praying! Hope you get some sleep too! Hugs!!!

Finding Normal said...

Praying for speedy answers and peaceful days and nights.

Jacquie said...

I try to think of just the right thing to say, and... I can't.
I'm thinking of you and Mallorie, and wanting the best for both of you.
I have faith.
I'm waiting to hear the good news.

Krystal said...

Praying for Mallorie and all of you!

laura said...

praying for you and the rest of your sweet crew. let me know if hannah needs a ride monday. i'd be happy to get her. give some love to mallorie from Sam. we love you.

Janet said...

Hi, I read saw this prayer request on Annabel's blog and just wanted to say we will be praying. I can't imagine how tired you must be, and I hope tonight is better for you both.