Mallorie has been back in the hospital since Saturday evening. I just haven't had blog access until we got transferred back here to Houston (yesterday), and yesterday was such a blur ... and today I was feeling so sleep-deprived that this is the first time I have been able to get to posting.
Mal had been having more seizures even with her medication dosages being increased, and with her seizures she was having vomiting/reflux, so we were worried about her breathing. We were able to spend the first few days (through Wednesday) in a local hospital where Mallorie and we always receive such gentle care, so that was a huge blessing. Eventually, though, her neurologist in Houston felt that she needed to be out here for them to work on getting her seizures controlled. We are currently in a 4 bed room, and there is no sense that this will change anytime soon, because each time a room opens, a new patient is admitted into that room. I'm blessed that Hannah and John are here, so today I put earplugs in and tried to nap some in a chair next to Mallorie's bed, because last night there were so many discussions going on throughout the night about her seizures, and the lack of sleep was starting to catch up with me.
Please pray that tonight is quieter, because it was pretty loud (mostly staff conversations) in the room and in the hallway all night, and I don't want to use earplugs during the night and possibly miss hearing a change in Mallorie's breathing that could let me know she is having a seizure and might need to be suctioned.
She got a PICC line, now.
I know this is not much, but I have to get back to her bedside.
This Try-somy Girl
3 days ago