Saturday, March 7, 2009

Need a New Name for Puke

This blog thing is not Mommy's cup of tea, after all. But just so everyone knows I'm fine, here's a recap.

Saturday, Sunday, Monday
I wake up, play, listen to music, get lots of kisses. Mommy decides it's Serious Food Days, so I get beef, chicken, boiled egg yolks, peaches, yogurt, applesauce, bananas, green beans, squashes, brown rice, peas. Not all at once, sillies. But I do really well, and everything seems OK. Then I puke Monday evening and night.

Mommy decides the puking I did through the night might have something to do with pooping too much and decides maybe the magnesium/vitamin C stuff she gives me is "too poopy," and she doesn't like how my diaper rash just stays so bad. So she decides it's a day to try Warm Water With Prunes, instead of magnesium stuff. Yummm. All day I poop, get milk, listen to music, play. And puke. I use lots and lots of those cool new flannel wipes Mommy and Matthew sewed just for me,

and wipe out my supply of cloth diapers.

Mommy decides I'm pooping too much, and because she hates that my butt still looks bad, she decides it's a Barley Cereal Day, and so I stop pooping, just like that. I get milk, puke, and get lots of baths, so I smell great, anyway. I listen to Raffi. I puke some more. Mommy refuses to call it reflux, because she hates all talk of surgeries to treat reflux and puking. No idea why she calls it puking. Maybe we should call it a name no one else knows, except the family! :) Mommy hits the "volume" button on the feeding pump at about 10 pm, because she thinks it's a cool thing to have on a pump.

Mommy decides early in the morning that I need a haircut, and everyone tells her to put the scissors down. Even Ida calls from the hospital! So I play, and puke throughout the day, and because I'm puking so much, when she gets a call at work, Mommy decides it was because of trying to fit feedings in around therapy yesterday. Or maybe The Barley Day. But everyone forgot that we were going to do only liquids on therapy days, because they digest faster and can fit in between therapy sessions. So she says only Pedialyte all day, to let my stomach rest a little bit, and let me get lots of fluids in, so maybe I can poop again.

And I get Lactulose, which I personally hate, because it makes my tummy cramp. But I sure do poop! No one even talks about cloth diapers, wipes, anything! They even pull out the disposable pads Becca gave me the other day! I puke a lot, too. Mommy's at work and everyone at home thinks I can't get pedialyte or anything if I puke, so I don't get much today, because ... I keep puking. But I do get a haircut. I even gag and try to puke there. Mommy comes home from work and goes straight to bed, because she's been sick all day. I moan a lot at night and Daddy stays by my crib most of the night, rubbing my head and playing with my (little bit of remaining) hair and aiming my fan at me to help me calm down. Mommy's worried I might be sick, too, but she goes back to sleep.

Mommy gets up kind of late, because she thought she was going to stay home from work, she was so sick all night. She hits the "volume" button on the feeding pump, and reads something like 517. What? in a day and a half, she realizes, that except for one milk bottle early yesterday morning, I got only Pedialyte, by pump ... but I puked so much that everyone was holding my feedings most of the time. She realizes that I better get some fluids, and fast! She decides she LOVES a feeding pump, because she'd never know that the real reason for all my puking wasn't about pooping, prunes, barley, other solid foods, or anything. Just like how I never gagged or puked all those days in the hospital with IV's going, now Mommy and Daddy think it's how much I drink! Mommy and Daddy both feel silly, but seriously. Most babies just get fed when they cry, "in case" it's why they are crying. If they aren't hungry, they won't eat. No one does that with me, because I eat with my tube! So Mommy gives me a bunch of Pedialyte really fast, and I have my tongue out to say, "Thirsty!" so I get to guzzle a bunch with my squirt bottle, too,

and the rest of the day it's drink, drink, drink, mostly in my tube. Pedialyte, then milk. Pedialyte, then milk. All day. I only spit up a tiny bit one time, and I'm feeling a lot better!

No puking all night, so I wake up, get some milk, get a bath, get rolled around, rolled around, rolled around, get dried off, dressed up, eyes covered up (my eyes are really sensitive to the son, just like Annabel's and Vera's), and jump in the van, get buckled in my car seat, and puke. And puke. Mommy knows better than this, that reflux puking and babies and after-feeding baths and rolling don't mix, but she forgets sometimes, so I had to remind her. I'm fine, so they bring me back inside.

Kidding!!!! We go out driving around, and while I'm sitting in wet puke, happy as can be, Mommy and Jacob look for wild violets to dig up from the ditches in the neighborhood and Daddy watches me. They never find any of the violets that the girls found JUST 4 DAYS AGO. Mommy says they have a really short season, so the ones she got in the vases from my sisters are all she gets. They find vetch and other beautiful wildflowers, instead, and Jacob finds a sweet ladybug, and brings her with him. I barf again, so back home and in the house we go, carseat and all, because now my seat cover needs to be washed. Jacob loses his ladybug between the van and the house, so he's upset, but I'm cool. I love my baths, and I get another one. And Jacob keeps kissing me to try to make me smile for the camera.

I got a package today, with 3 new flannel fitted diapers, and boy, are they loose! I got to wear them with my beautiful diaper liners.

And Hannah decided the other day that she doesn't like a shirt, and put it in a bin she likes to call Yard Sale. Making Mommy laugh. So today, I went to Yard Sale, and got myself a new dress that looks just like Hannah's shirt. :) She has no idea how good this looks on me, because she and Carley are dancin' up a storm at convention. And probably taking home all sorts of awards with their team!

Mommy wants to know if anyone can figure out what most of the "journalling" everyone does about me all week is mostly about. a) ladybugs b) solid foods that I seem to do OK "eating" through my tube c) cloth diapers and wipes d) puke and poop

If you guess the right answer, she says you can come over and help take care of me. Someone will teach you how to feed me. It's easy; all my brothers and sisters know how. You just gotta remember that puking (which we are SO gonna rename) is not a reason to stop feeding me. And no day is ever a Barley Day.

And you gotta like chicks.


Jessica mommy to Alex/ RTS said...

Oh my goodness.....Feel better soon. I love your great attirude through it all, youre such a sweetie.

Laurie in Ca. said...

Wow, what a week you girls have had. I am exhausted for you!! I hope things are getting back on track for you and yeah, if I lived close I would come over and give you a break.
I just love those "fluffy" thighs:) Just like my Hannah's. Take care my sweet girlfriends, I am glad to see you here.

Love and Hugs, Laurie

The VW's said...

Whew! Praying for no puke (or whatever you want to call it!) Hang in there!

May said...

all that puking and you've still got your sense of humour! hats off. I'd be throwing clothes in the bin!

Zachery Reed said...

Sounds like a really rought week. I hope it gets better soon.

Laurie in Ca. said...

Hey Connie,

Just want you to know I am thinking about you tonight and hope things are much better since your last post. I love you and am praying for you too.

Love and Hugs, Laurie

ANewKindOfPerfect said...

I just wanted to check in, I hope everything is going alright with Mallorie. You haven't updated in a while. I hope she's great, and just keeping you busy!

ANewKindOfPerfect said...

Hi again! I'm replying here to your post on my blog. :) We use a recipe that our metabolic dietician came up with for us. We have to be very low fat and high protein, due to her metabolic disorder. We use baby food fruits (peaches, pears, or prunes), veggies (any straight veggies, just none of the pasta mixes or anything), and meat (so far turkey, chicken, beef, and I just bought ham). We also mix in baby rice cereal, polycose for calories, and pedialyte. Oh, and salt for sodium. :)

We do not use apples because of her reflux (yes, even after two fundos) because of their high acidity. We do not use bananas because they are a cross allergen to latex, which she is allergic to (same as avocado).

So far, no reaction to any of these!! :)

We figured out the milk protein intolerance when we realized it could be the Beneprotein. Immediately she was better when we stopped it! On it, she was gagging and retching and screaming a TON. Same with soy protein powder - we tried it for two days, with horrid results. Up all night screaming, gagging and retching, just like on the beneprotein.

So for now we avoid all dairy and soy. I am LOVING putting real food in her tube!

As for the constipation, it is definately better than diarrea but obviously still no fun. When she goes three days without a BM, I use baby food prunes the next day as her fruit. Since she gets 5oz of fruit a day, it's enough to get her going. :) We have done Miralax before and it's okay, but it's so hard to get the right dose. Enough, but not too much. I really prefer using prunes and letting nature take it's course! :)

Anonymous said...

Hi Connie,

I feed my baby girl of 8 month " spirulina in powder form thru her milk. Helps to give her all the viatamins she need, smoothen out her constipation. For Metabolism disorder you can look for this supplement called Dr Xeniji thru the web. Is super good for babies and all ages. Proven on both my young kids. You might like to give it a try...

The VW's said...

YES!!! Let's all meet at Laurie's for fellowship and Coca Cola!!! I LOVE this idea! I so wish this could come true!

ANewKindOfPerfect said...

Hey Connie, just checking in on you and Mallorie! I hope that no update means that things are just boring and normal at home right now. :)

Anonymous said...

Hi Connie

Like many others I check this site often for updates. I was a bit worried, but Cathy informed me that things are fine. Keep us updated.